ʻO kēia ka moʻolelo o ka lanakila ʻana o Liam i ka hakakā me Non – Hodgkin Anaplastic Large Cell Lymphoma! Ma ke ʻano he mau mākua kā lākou keiki i ʻike ʻia me ka maʻi kanesa, ua hopu mākou i kēlā me kēia huaʻōlelo a i ʻole moʻolelo e hāʻawi iā mākou i ka manaʻolana a me ka manaʻoʻiʻo… lana ka manaʻo e hāʻawi ka moʻolelo a Liam iā ʻoe!
Hoailona 1
Hoʻopau i Ianuali 2012 Ua nahu ʻia ʻo Liam i ʻekolu mau makika ma kona maka… 3 ma kona lae a hoʻokahi ma kona ʻauwae. 2 pule ma hope mai ua nalowale ka 2 ma kona lae akā ʻaʻole nalo nā mea ma kona auwae. Pono mākou e lawe iā Liam no kahi mākaʻikaʻi nui ma ka pediatrician a nīnau iā ia inā pono mākou e hopohopo.
Hana 1
Pono ke kauka lapaʻau e hoʻokahe i ka 'infection' a i ʻole 'abscess'. Ma hope o ka hana ʻana, haʻi mai ke kauka ʻoka iā mākou ʻaʻohe mea i puka mai i waho o ka ʻeha, ʻo ia ka mea i hoʻoulu hou i nā nīnau. Ua ʻōlelo ʻia mākou e waiho iā ia no 10 mau lā e ola ai. I loko o ʻelua mau lā ua ulu nui ka ulu i kēlā me kēia lā, a hiki ʻole iā mākou ke kali hou. I kēia manawa, ʻo ka ʻike ʻana he 'granular…mea' ka ulu ʻana.
Ua hele ka lua o ka hana e like me ka mea i hoʻolālā ʻia… e ʻae i kahi kauka lapaʻau ʻē aʻe. Ua ʻike hou ʻia ʻo Liam me ka 'granular…kekahi mea'. … ʻaʻohe mea e hopohopo ai. Ma hope pono o kēlā kelepona ʻana ua hoʻomaha loa mākou, a ua hoʻopaʻa i kahi manawa me ke kauka lapaʻau no ke kakahiaka Pōʻakahi.
ʻO ke ahiahi Pōʻalima, ma hope o ke kelepona wikiwiki ʻana mai ke kauka, ua haʻi ʻia iā Liam he 'Lymphoma'…Pīhoihoi mākou.
ʻO ka hopena pule pōʻino loa ia no māua ʻo Belinda…Ua hele ʻo Liam no kāna ʻoki lauoho mua i ka Pōʻaono…ʻo nā kūpuna o Liam (mai nā ʻaoʻao ʻelua) i laila e kākoʻo iā mākou… I kēia wā ʻaʻole maopopo iā mākou he aha ke ʻano o Lymphoma a i ʻole ka pae.
ʻO ka nūhou maikaʻi mua i loaʻa iā mākou ʻo ia ahiahi…i ka manawa i haʻi mai ai ʻo Kauka Omar iā mākou ua maʻemaʻe ka iwi iwi a me ke koko…a ua ʻike ʻo ia iā Liam me ka maʻi 2 Anaplastic Large Cell Lymphoma. ʻAʻole hiki i kekahi ke manaʻo he maikaʻi ka nūhou e like me ia… he nūhou maikaʻi ia no Belinda a me māua! ʻO ia ka mea i ʻoi aku ka kiʻekiʻe o ke ola… ʻakaʻaka pehea e hauʻoli ai kekahi e kamaʻilio e pili ana i kahi 'kiʻekiʻe o ke ola ola'…
Ua hoʻonohonoho ʻia ka papa hana lapaʻau…ʻo kēia wale nō ka mea a mākou e kali nei ʻo ka hopena hope loa ma ka lymph…e hōʻike maikaʻi ana inā ua laha ka maʻi kanesa i loko o ka wahi lymph o Liam a puni kona ʻāʻī… he kali lōʻihi… i ka lā ma mua o ka Pōʻalima), ua loaʻa iā mākou ka nūhou maikaʻi loa… ua loaʻa iā mākou i ka manawa… maʻemaʻe ka lymph!!!
Hoʻomaka mākou e manaʻoʻiʻo hou… a i ka pule ʻana a ko mākou mau hoaaloha a me ko mākou ʻohana a hoʻomaikaʻi iā Liam… ʻaʻole wale nā hoaaloha a me nā ʻohana… ʻo nā poʻe a mākou i ʻike ʻole ai… ʻaʻole ʻo ia e noʻonoʻo ʻelua e hoʻouna i nā pule a me nā manaʻo maikaʻi i kekahi e manaʻo nei i kekahi mea i ko lākou ola.
Ua mālama maikaʻi ʻo Liam i ke kau mua o ka chemo… ʻO ka mea ʻē aʻe i hana ai ke kauka… a ʻo mākou, hauʻoli loa i ka hapalua o ka nui o ka puka lymph node waho. Hiki iā mākou ke ʻike i ka emi ʻana i kēlā me kēia lā. ʻO ia ka mea i hōʻoluʻolu iā mākou a pau ke hoʻohana nei mākou i ka papa hana lapaʻau kūpono, me ka ʻike pololei.
Manaʻolana mākou ma hope o ka pule mua o ka chemo… ʻAno maikaʻi ʻo Liam. Mai poina wale i nā lāʻau nausea. He kōkua nui nō hoʻi ia i ka wā e hoʻi ai mākou i ka home no kekahi manawa - ʻo ia hoʻi, ʻaʻole pono ʻo Liam i ke kaʻa ʻaihue e alualu ana iā ia me nā ʻeke wai. Pono wau e ʻae - leʻaleʻa ʻo ia i ke keʻena - aia nā kahu hānai e nānā nui nei…e hoʻomana iā ia…ʻoluʻolu loa ʻo ia i kēia manawa; he mea minamina ʻaʻole hiki iā ia ke ʻike i kona mau hoaaloha a me kona ʻohana! He mea kupanaha loa, ma mua, ua manaʻo wau e lawe mākou i kēlā me kēia lā - ʻo ia ka hola i kēlā me kēia hola i kēlā me kēia lā… aia kekahi mau manawa ʻo ia kona ʻelemakule, e holo ana a makemake e hākōkō me kona makuahine a me aʻu… ʻO ka manawa e uē mālie ai ʻo ia… ʻoi aku ka maikaʻi ma mua o ka uē ʻana… a ʻaʻole maopopo iā mākou he aha ia… manaʻo mākou he nausea.
I ka hoʻomaka ʻana o Liam i ka ʻai a me ka inu liʻiliʻi a ua ʻoi aku ka ʻino o kona ʻū, hopohopo mākou i nā mea āpau. ʻO ka mea hope loa a mākou i makemake ai, ʻo ia ka hele ʻana o ka maʻi ma luna o kona umauma. Eia naʻe, ʻike mākou inā hopohopo mākou i kekahi mea, pono mākou e lawe iā ia i ka haukapila. Ua palekana ka lula ma mua o ka minamina.
Ke manaʻo ʻino ʻo Liam, makemake ʻo ia i kona makuahine, ʻaʻole naʻe ʻo kona makuakāne… kaumaha iaʻu i kona hoʻokuke ʻana iaʻu, akā hauʻoli ʻo ia no kona makemake i kona makuahine akā naʻe… manao pela. He ʻoluʻolu maoli nō naʻe.
No ka hōʻuluʻulu ʻana ma hope o nā pōʻai mua 3 o ka chemo:
- Inā he kuni ʻo Liam, lawe pololei mākou iā ia i ka haukapila
- Inā he haʻahaʻa loa nā keʻokeʻo keʻokeʻo o Liam, e loaʻa iā ia kahi injection e hoʻonui hou i ka maʻamau
- Ua loaʻa iā Liam nā lāʻau antibiotic ma muli o kahi maʻi maʻi
- Aia ʻo Liam ma ka oxygen no hoʻokahi pō
- Ua paʻa ke koko o Liam
ʻEhā kau kimo
ʻO kekahi mau memo koʻikoʻi no kēia kau he:
- Ua paʻakikī kēia chemo iā Liam…ma muli o nā kumu like ʻole:
- ʻO ka ʻōpū o ka ʻōpū - kaʻawale ma muli o ka ʻōpala
- ʻAʻole ikaika kona kino e like me ka wā kahiko
- Hiki iā ʻoe ke hoʻāʻo e ʻike i ke ʻano o kāna pane ʻana i nā lāʻau chemo like ʻole, akā mai kāhāhā ʻoe i ka hōʻike hewa ʻana.
- ʻAʻole kōkua ka niho i ke kumu - ʻoi aku ka paʻakikī o ka mālama ʻana i nā hōʻailona
- Aia ka malamalama ma ka hope o ka tunnel… ma ka hapalua o ke ala!
Aia mākou ma ka helu 5 no ka chemo a hoʻokahi wale nō e hele ma hope o kēia.
E like me ka mea maʻamau, ʻelua mau helu no kēia kau:
- Mai hoʻomaha…e like me nā mākua!
- ʻAʻole kōkua ka niho
- E hōʻoia i ka hiki ʻana mai o ka ʻeha waha i ka wā e niho ai (no ka mea āu e hana ai ma ke ʻano he mea pale)
- ʻO ka constipation kahi ʻāpana o ka hana - a ʻeha e like me ka pupule i ka hopena o Liam
- E hahai i kou manaʻo ma ke ʻano he mau mākua - ʻike ʻoe inā ʻaʻole pololei kekahi mea
- E mākaukau – e nui ana nā lāʻau lapaʻau (antibiotic, neupogen, prafulgen, volaron , Calpol, Prospan, Duphalac
- E ikaika… no ka mea hiki ke ʻino i kēlā me kēia manawa!!!
- ʻAʻohe mea i ʻoi aku ka ikaika ma mua o ka pilina ma waena o ka makuahine a me kāna keiki - ʻo ke aloha a me ka ikaika o Belinda e ʻoi aku ka ikaika o Liam!
