ʻO ka noho ʻana me ka lymphoma a me ka mālama ʻana he manawa koʻikoʻi me nā pilikia like ʻole. Ke noʻonoʻo nei paha ʻoe i ke kākoʻo i loaʻa no ka poʻe me ka lymphoma. E hāʻawi kēia ʻaoʻao i kekahi mau ʻōlelo aʻoaʻo kūpono a me nā ʻike e pili ana i nā lawelawe kākoʻo i loaʻa paha iā ʻoe. Loaʻa kēia mau mea i ke kōkua me ka halihali, ke kākoʻo kālā, ke kākoʻo olakino noʻonoʻo a me nā mea hou aku.
Maikaʻi i kēlā me kēia lā
ʻO ka loaʻa ʻana iā ʻoe a i ʻole kekahi mea aloha i loaʻa i ka lymphoma he mea weliweli nui a e hoʻololi i nā mea he nui e pili ana i kou noho ʻana. ʻO ka ʻike ʻana i kāu mea e pono ai ma ka hoʻomaka e kōkua iā ʻoe e hoʻolālā i mua e hōʻoia e loaʻa iā ʻoe ke kākoʻo kūpono i ka wā e pono ai ʻoe.
Pehea ka hopena o ka lymphoma i kou ola e pili ana i nā mea he nui, e like me:
- He aha ke ʻano o ka lymphoma iā ʻoe
- inā pono ʻoe i ka lāʻau lapaʻau, a me ka lāʻau e loaʻa iā ʻoe
- kou mau makahiki a me kou ola kino holoʻokoʻa
- kāu pūnaewele kākoʻo
- He aha kou pae o ke ola (e hoʻomaha ana ʻoe mai ka hana, hānai i nā keiki liʻiliʻi, male male a kūʻai paha i hale)
- inā ʻoe e noho ana ma ke kūlanakauhale a ma ke kuaʻāina paha.
Ma waho o kēia mau mea, pono nā mea āpau me lymphoma e hana i nā loli āu e pono ʻole ai e hana. ʻO ka hoʻopaʻa ʻana i kēia hopena hiki ke pilikia a hana i nā luʻi hou i kou ola.
E hāʻawi mai nā ʻāpana aʻe i kekahi mau ʻōlelo aʻoaʻo e pili ana i ka mālama ʻana i nā hana o kēlā me kēia lā a me nā mea e noʻonoʻo ai i hiki iā ʻoe ke hoʻolālā i mua.
Ke hoʻokele nei i ka ʻōnaehana mālama ola kino
He mea paʻakikī loa ka hoʻokele ʻana i ka ʻōnaehana mālama olakino, ʻoiai inā he ʻokoʻa loa kēlā me kēia haukapila a ʻokoʻa loa nā ʻike ponoʻī o kēlā me kēia kanaka.
Ma kēia wikiō ma lalo nei, kamaʻilio ʻo Andrea Patten, he kanaka hana kaiaulu koʻikoʻi e pili ana i kāu mau pono a me kekahi mau manaʻo koʻikoʻi, inā ʻoe a i ʻole kekahi mea aloha i loaʻa i ka lymphoma.
Nā paukū lehulehu Halemai pilikino a me nā loea
He mea nui e hoʻomaopopo i kāu mau koho mālama ola kino ke kū nei ʻoe i kahi hōʻailona lymphoma a i ʻole CLL. Inā loaʻa iā ʻoe kahi ʻinikua olakino pilikino, pono paha ʻoe e noʻonoʻo inā makemake ʻoe e ʻike i kahi loea i ka ʻōnaehana pilikino a i ʻole ka ʻōnaehana lehulehu. Ke hoʻouna aku nei kāu GP ma o kahi kuhikuhi, e kūkākūkā i kēia me lākou. Inā ʻaʻohe āu ʻinikua ola pilikino, e hōʻoia e hōʻike pū i kāu GP i kēia, no ka mea, e hoʻouna ʻokoʻa paha kekahi iā ʻoe i ka ʻōnaehana pilikino inā ʻaʻole lākou i ʻike e makemake ʻoe i ka ʻōnaehana lehulehu. Hiki i kēia ke hoʻopiʻi ʻia e ʻike i kāu kauka.
Hiki iā ʻoe ke hoʻololi mau i kou manaʻo a hoʻololi i kahi pilikino a lehulehu paha inā hoʻololi ʻoe i kou manaʻo.
Kaomi i nā poʻomanaʻo ma lalo e aʻo e pili ana i nā pōmaikaʻi a me nā hemahema o ka mālama ʻana i nā ʻōnaehana lehulehu a me nā ʻōnaehana pilikino.
Nā Pōmaikaʻi o ka Pūnaehana Aupuni
- Hoʻopili ka ʻōnaehana lehulehu i ke kumukūʻai o nā lāʻau lapaʻau lymphoma papa inoa PBS a me nā noiʻi no
lymphoma e like me ka PET scans a me ka biopsy. - Uhi pū ka ʻōnaehana lehulehu i ke kumukūʻai o kekahi mau lāʻau i helu ʻole ʻia ma lalo o ka PBS
like dacarbazine, ʻo ia ka lāʻau lapaʻau chemotherapy i hoʻohana mau ʻia i ka
ka mālama ʻana i ka lymphoma o Hodgkin. - ʻO nā kumu kūʻai ma waho o ka ʻeke no ka mālama ʻana i ka ʻōnaehana lehulehu no ka maʻi maʻi ma waho
nā palapala no nā lāʻau lapaʻau āu e lawe waha ai ma ka home. He mea liʻiliʻi loa kēia a ʻo ia
i kākoʻo hou ʻia inā loaʻa iā ʻoe kahi mālama olakino a kāleka penikala paha. - Nui nā halemai aupuni he hui o nā loea, nā kahu hānai a me nā limahana olakino pili, i kapa ʻia ʻo ka
Ke mālama nei ka hui MDT i kāu mālama. - Hiki i nā halemai nui nui ke hāʻawi i nā koho lapaʻau i loaʻa ʻole i ka
ʻōnaehana pilikino. No ka laʻana kekahi mau ʻano o ka transplants, CAR T-cell therapy.
Nā pōʻino o ka ʻōnaehana lehulehu
- ʻAʻole paha ʻoe e ʻike mau i kāu kauka inā loaʻa kāu mau koho. ʻO ka hapa nui o nā halemai aupuni he mau kikowaena hoʻomaʻamaʻa a kula kiʻekiʻe paha. ʻO ia ke ʻano e ʻike paha ʻoe i kahi mea kākau inoa a i ʻole nā mea hoʻopaʻa inoa hoʻomaʻamaʻa kiʻekiʻe i loko o ke keʻena, a laila e hōʻike hou i kāu kauka.
- Aia nā kānāwai koʻikoʻi e pili ana i ka uku uku a i ʻole ka ʻae ʻana i ka lepili i nā lāʻau lapaʻau i loaʻa ʻole ma ka PBS. Pili kēia i kāu ʻōnaehana mālama olakino a ʻokoʻa paha ma waena o nā mokuʻāina. ʻO ka hopena, ʻaʻole loaʻa iā ʻoe kekahi mau lāʻau lapaʻau. Hiki iā ʻoe ke loaʻa i nā lāʻau lapaʻau maʻamau a ʻae ʻia no kou maʻi.
- ʻAʻole hiki iā ʻoe ke hele pololei i kāu haematologist akā pono paha e hoʻopili i kahi kahu hānai kūikawā a i ʻole ka mea hoʻokipa.
Nā pōmaikaʻi o ka ʻōnaehana pilikino
- E ʻike mau ʻoe i ka haematologist like ʻole me ka loaʻa ʻole o nā kauka hoʻomaʻamaʻa ma nā lumi pilikino.
- ʻAʻohe kānāwai e pili ana i ka uku hui a i ʻole ka ʻae ʻana i ka lepili i nā lāʻau lapaʻau. Hiki ke kōkua nui kēia inā loaʻa iā ʻoe nā maʻi hoʻihoʻi hou a i ʻole kahi subtype lymphoma ʻaʻole nui nā koho lapaʻau. Eia nō naʻe, hiki ke loaʻa ke kumukūʻai me nā lilo nui o waho o ka ʻeke e pono ai ʻoe e uku.
- Hiki ke hana wikiwiki ʻia kekahi mau hoʻāʻo a i ʻole hoʻāʻo hana ma nā halemai pilikino.
ʻO lalo o nā halemai pilikino
- ʻAʻole i uhi ka nui o nā kālā mālama ola i ke kumukūʻai o nā hoʻokolohua a/a i ʻole ka lāʻau lapaʻau. Hoʻokumu ʻia kēia ma kāu waihona kālā olakino, a ʻoi aku ka maikaʻi o ka nānā ʻana. E loaʻa iā ʻoe kahi uku komo makahiki.
- ʻAʻole hiki i nā poʻe loea āpau ke uku nui a hiki ke uku ma luna o ka pāpale. 'O ia ho'i, hiki ke loa'a nā kumukū'ai no ka 'ike i kāu kauka.
- Inā makemake ʻoe i ke komo ʻana i ka wā o kāu mālama ʻana, ʻoi aku ka kiʻekiʻe o ka nui o nā kahu hānai ma kahi pilikino i nā haukapila. ʻO ia hoʻi, ʻoi aku ka nui o nā maʻi e mālama ʻia e kahi kahu hānai ma kahi haukapila pilikino ma mua o kahi haukapila aupuni.
- ʻAʻole ʻo kāu kauka hematologist ma ka pūnaewele ma ka haukapila, maʻa lākou e kipa no nā manawa pōkole hoʻokahi manawa i ka lā. Hiki i kēia ke manaʻo inā maʻi ʻole ʻoe a makemake koke i ke kauka, ʻaʻole ia ʻo kāu loea maʻamau.
Hana & Haʻawina
Hiki paha iā ʻoe ke hoʻomau i ka hana a i ʻole ke aʻo ʻana me ka lymphoma. Eia nō naʻe, e pili ana kēia i kou manaʻo, he aha kāu lapaʻau a pehea ʻoe e loaʻa ai kekahi hōʻailona mai ka lymphoma, a i ʻole nā hopena ʻaoʻao mai ka mālama ʻana.
Kaomi ma ka pihi hana a i ʻole ke aʻo ʻana ma lalo e aʻo e pili ana i nā mea e noʻonoʻo ai i kāu hana a i ʻole ke ola kula.
hana
Ke hoʻomau nei kekahi poʻe i ka hana e like me ka wā ma mua a hoʻomaha wale no nā koho, hoʻemi kekahi i kā lākou hana i ka hapa-manawa a ʻo kekahi poʻe e hoʻomaha loa i ka hana.
E kamaʻilio me ʻoe i ke kauka, nā mea aloha a me ka wahi hana
E kamaʻilio me ʻoe i ke kauka e pili ana i ka mea a lākou e manaʻo ai no ka hana a me ka manawa e pono ai mai ka hana. Hiki iā lākou ke kākau iā ʻoe i palapala hōʻoia olakino inā pono.
E kamaʻilio me kou ʻohana, nā mea aloha a me kāu wahi hana e hana i kahi hoʻolālā. E hōʻoia i ka ʻike ʻana o nā mea a pau i kekahi manawa hiki ke hoʻololi i nā hoʻolālā inā pono ʻoe e hele i ka haukapila, hoʻopaneʻe ʻia i nā manawa i koho ʻia a i ʻole ke kaumaha a me ka luhi.
Ua ʻike kekahi poʻe ʻo ka hoʻomau ʻana i ka hana e kōkua iā lākou e mālama i kahi maʻamau i kā lākou hana maʻamau a kōkua iā lākou e hoʻokō maikaʻi aʻe i ka wā mālama. Ua ʻike ka poʻe ʻē aʻe i ka luhi o ke kino a me ka noʻonoʻo a hoʻoholo lākou e hoʻomaha.
Hiki ke hoʻololi i ka hana e noʻonoʻo ai
Inā hoʻomau ʻoe i ka hana, ʻo kekahi mau hoʻololi i hiki i kāu hana ke hana e kākoʻo iā ʻoe e komo pū:
- Hāʻawi i ka manawa hoʻomaha no ka hele ʻana i nā koho lapaʻau a me ka mālama ʻana
- Hoʻemi a hoʻololi paha i nā hola āu e hana ai (nā lā pōkole a i ʻole he pule hana hoʻemi)
- Mahi mai ka home
- Ke hoʻoponopono ʻana i ke ʻano o ka hana, no ka laʻana, ka hoʻololi ʻana i kahi kūlana koʻikoʻi i ke kino a i ʻole ka pale ʻana i nā mea maʻi
- Hoʻololi i ka wahi hana
- Ke hoʻololi hou i ka papahana hana: hiki i kēia ke komo i ka hoʻi lohi ʻana i ka hana ma kahi haʻahaʻa hiki ke piʻi mālie i ka manawa.
ʻO ka loulou ma lalo nei i ka Centrelink's 'Palapala Hōʻoia o nā Kūlana Lapaʻau'. Pono pinepine ʻia kēia palapala e nā keʻena aʻo a i ʻole nā wahi hana e hana i nā hoʻololi kūpono i ka hana a i ʻole ke aʻo ʻana i nā ʻōlelo paʻa.
like
ʻO ka loaʻa ʻana o ka lymphoma e pili ana i ke aʻo ʻana, inā ma ke kula, kulanui a i ʻole nā haʻawina pili i ka hana. Hiki i kēia hopena ke pili iā ʻoe inā he haumāna ʻoe, makua a kahu paha. Pono paha ʻoe e hoʻomaha a hoʻololi paha i kāu hoʻolālā haʻawina.
Ua koho kekahi poʻe e hoʻomau i kā lākou aʻo ʻana i ka mālama ʻana i ka maʻi lymphoma. No kekahi poʻe, hiki i ka hoʻomau ʻana i ke aʻo ʻana ke hāʻawi i kahi mea e hana ai a nānā aku ma waena o ke komo ʻana i ka haukapila a me nā manawa kali lōʻihi ma waena o nā koho. ʻIke kekahi poʻe ʻo ka hoʻomau ʻana i ke aʻo ʻana e hāʻawi i ke koʻikoʻi a me ke koʻikoʻi pono ʻole, a koho lākou e hoʻopanee i kā lākou kēkelē kulanui a i ʻole e hoʻomaha i ke kula.
Inā ʻoe a i ʻole kāu keiki i ke kula, e kamaʻilio me ke kula/kulanui a kūkākūkā i nā koho kākoʻo i loaʻa.
Hiki ke hoʻololi i kāu papahana haʻawina e noʻonoʻo ai
- ʻO ke aʻo ʻana ma ka home a i ʻole ka hoʻopili ʻana me ka lawelawe aʻo ʻana i ka haukapila (pinepine nā Halemai o nā keiki e hāʻawi i kahi papahana kākoʻo kula kahi e hiki ai i nā kumu haukapila ke kipa i ka haukapila)
- E kamaʻilio i ke kula e pili ana i kahi haʻawina loiloi hoʻemi ʻia a i ʻole ka papahana aʻo i hoʻololi ʻia kahi e hoʻomau ai ke aʻo ʻana akā me nā koi loiloi kūpono ʻole.
- E hoʻomau i ka pilina me ke kula a me nā haumāna, e kōkua kēia i ka mālama ʻana i nā pilina a pale i ka noho kaʻawale ʻana mai nā hoaaloha kula.
E hui me ke kumu kula a i ʻole ka ʻōlelo aʻoaʻo
Inā ʻoe e aʻo ana i ke kēkelē ma ke kulanui, e hui me ka mea kākau inoa o ke kulanui a me ke kākāʻōlelo hoʻonaʻauao e kūkākūkā i kou kūlana. He koho paha ka hoʻopaneʻe ʻana i kāu mau haʻawina, akā naʻe, ʻo ka hoʻemi ʻana i kāu haʻawina haʻawina ma ka hoʻokuʻu ʻana mai ka manawa piha a i ka hapa-manawa hiki ke koho.
Hiki paha iā ʻoe ke hoʻololi i nā lā kūpono o kāu mau hana a i ʻole nā hoʻokolohua e pili ana i kāu mālama ʻana. Pono paha ʻoe i palapala hōʻoia no laila e nīnau i kāu kauka lapaʻau a i ʻole GP inā hiki iā lākou ke hana i hoʻokahi no ʻoe.
ʻO ka loulou ma lalo nei i ka Centrelink's 'Palapala Hōʻoia o nā Kūlana Lapaʻau'. Pono pinepine ʻia kēia palapala e nā keʻena aʻo a i ʻole nā wahi hana e hana i nā hoʻololi kūpono i ka hana a i ʻole ke aʻo ʻana i nā ʻōlelo paʻa.
ke kālā no
Hiki i kahi hōʻailona lymphoma a me kāna lapaʻau ke hana i ka pilikia kālā; ʻAʻole hiki iā ʻoe ke hana no ka manawa lōʻihi.
Hiki ke paʻakikī ka loaʻa ʻana o ke kākoʻo kālā, akā aia kekahi mau uku kākoʻo kālā i loaʻa ma o nā hui aupuni like ʻole e like me Centrelink, Medicare a me Child Support. Hiki paha iā ʻoe ke komo i kekahi mau uku ma o kāu waihona superannuation.
Inā he kākā'ōlelo kālā kāu, e haʻi iā lākou e pili ana i kāu lymphoma i hiki iā lākou ke kōkua iā ʻoe e hoʻolālā pehea e mālama ai i kāu kālā. Inā ʻaʻohe ou kākāʻōlelo kālā, hiki iā ʻoe ke komo i kekahi ma o Centrelink. Aia nā kikoʻī e pili ana i ke komo ʻana i kahi kākāʻōlelo kālā Centrelink ma lalo o ke poʻo lawelawe ʻike kālā.
Kaomi ma nā pihi ma lalo e aʻo e pili ana i ke kākoʻo i loaʻa.
Kenekulia
Hiki i nā poʻe me ke kino kīnā, maʻi a ʻeha paha, a hiki i kā lākou kahu ke kelepona iā Centrelink ma 13 27 17 e nīnau e pili ana i nā uku a me nā lawelawe i loaʻa. Kaomi ma ka loulou e heluhelu ai: He alakai no na uku aupuni o Australia.
Aia kekahi o nā lawelawe uku Centrelink:
- Haʻawina maʻi: He uku kākoʻo kālā inā ʻaʻole hiki i kekahi ke hana a aʻo paha no kekahi manawa ma muli o ka maʻi, ʻeha a i ʻole ke kīnā.
- Haʻawina mālama: uku hou (bonus) kōkua ka uku kahu (ma ka hoʻohui) hiki ke loaʻa a hiki i 250,000/makahiki (ma kahi o $131/ʻelua pule) hiki ke hana i 25 mau hola a mau nō kēia.
- Uku kahu: He uku kākoʻo kālā inā mālama mau ʻoe i ke kanaka nona ke kīnā koʻikoʻi, ka maʻi a i ʻole ka ʻelemakule.
- ʻO ka penihana kōkua kīnā: Kākoʻo kālā no ke kīnā paʻa o ka naʻauao, kino a psychiatric paha e hoʻōki ai i ka hana ʻana.
- Download a hoʻopiha i ka palapala 'Claim for Disability Support Pension'
- Nā pono kīnā: Aia nā uku a me nā lawelawe e kōkua inā maʻi ʻoe, ʻeha a i ʻole ke kino kīnā.
- Uku no na keiki
- ʻO kaʻae no ka mobility: Hiki paha iā ʻoe ke komo i ka haʻawina kaʻa kaʻa inā loaʻa iā ʻoe ka lymphoma a ʻaʻole hiki iā ʻoe ke hoʻohana i ka transpont lehulehu. Hiki ke hoʻohana ʻia kēia no ka huakaʻi no ke aʻo ʻana, ka hana hoʻomaʻamaʻa (me ka hāʻawi manawaleʻa) a i ʻole e ʻimi i ka hana. E ʻike hou aʻe e ke kaomi maʻaneʻi.
- Haawina imi hana: Inā aia ʻoe ma ka haʻawina ʻimi Job a ʻaʻole hiki iā ʻoe ke ʻimi i ka hana ma muli o kāu lymphoma a i ʻole kāna mau lapaʻau, e noi i kāu kauka - GP a i ʻole hematologist e hoʻopiha i kā mākou a Centrelink Medical Certificate – palapala SU415. Hiki iā ʻoe ke hele i ka palapala ma ke kaomi maʻaneʻi.
Nā Kaiāulu
Inā makemake ʻoe i ke kōkua no ka hoʻomaopopo ʻana a i ʻole ke komo ʻana i nā lawelawe centrelink, hiki iā ʻoe ke noi e kamaʻilio me kekahi o kā lākou poʻe hana kaiaulu e hiki ke kōkua iā ʻoe e hana i kāu mea e pono ai, a pehea e komo ai. Hiki iā ʻoe ke kelepona aku i kahi Centrelink Social Worker ma ke kelepona ʻana 13 27 17. E noi e kamaʻilio me kekahi kanaka hana kaiaulu i ka wā e pane mai ai lākou iā ʻoe. Hiki iā ʻoe ke nānā i kā lākou pūnaewele ma aneʻi Nā lawelawe hana kaiaulu - Services Australia.
lawelawe ʻike kālā
ʻO kahi lawelawe ʻē aʻe e hāʻawi ʻia e Centrelink he lawelawe ʻike kālā e kōkua iā ʻoe e hoʻolālā pehea e hoʻonui ai i kāu kālā. E kelepona iā lākou 13 23 00 a i ʻole e ʻike i kā lākou ʻaoʻao pūnaewele ma aneʻi Ka lawelawe ʻike kālā – Services Australia
ʻO Medicare
Hiki i ka Medicare ke kōkua uhi i na koina lapaau a e aʻo pehea e hoʻemi ai i nā kumukūʻai. Hiki ke loaʻa ka ʻike e pili ana i nā uku Medicare a me nā lawelawe i loaʻa ʻaneʻi.
Kākoʻo keiki
- Uku hooponopono kahu he uku hoʻokahi. Kōkua ia i nā ʻohana ke ʻike ʻia kahi keiki ma lalo o 6 i kekahi o kēia mau mea:
- he mai nui
- ke kūlana olakino
- pilikia nui
- Uku kokua no ke kino kīnā he uku makahiki no ke kokua ana i na makua me na koina no ka malama ana i ke keiki me ke kino kīnā.
- Uku Lapaau Pono he uku makahiki e kōkua ai i ka hoʻonui ʻana i nā kumukūʻai ikehu home. Hiki kēia mai ka hoʻohana ʻana i nā mea lapaʻau koʻikoʻi e kōkua i ka mālama ʻana i ke kīnā a i ʻole kahi maʻi olakino.
Hoʻopaʻa makahiki
ʻOiai e mālama mau ʻia ana ka superannuation a hiki i kou piha ʻana i ke 65 mau makahiki, i kekahi mau kūlana hiki iā ʻoe ke komo i kekahi o ia mea ma ke kumu aloha. ʻO kekahi mau kūlana i manaʻo ʻia he kumu aloha:
- Ka uku ʻana no ka lāʻau lapaʻau (a i ʻole ka lawe ʻana i ka lāʻau lapaʻau).
- No ke kōkua ʻana i kāu moraki inā kokoke e pani ka panakō (e lawe i kou hale).
- Nā hana hou inā pono ʻoe e hoʻololi i kou hale ma muli o ka ʻeha a i ʻole ka maʻi.
- E uku no ka mālama palliative.
- E uku i nā lilo e pili ana i ka make ʻana o kekahi o kāu poʻe hilinaʻi - e like me ke kumukūʻai hoʻolewa a i ʻole ke kanu ʻana.
Hiki iā ʻoe ke loaʻa ka ʻike hou aku e pili ana i ke komo ʻana i kāu superannuation ma ke kumu aloha, ma ke kelepona ʻana i ka Federal Department of Human Services ma 1300 131 060.
ʻO nā inikua i kūkulu ʻia i loko o ka superannuation
Nui nā kālā hoʻolimalima i kūkulu ʻia i loko o ka 'palekana kālā' a i ʻole ka uku no ke kīnā mau loa i loko o ke kulekele. Loaʻa paha iā ʻoe kēia me ka ʻike ʻole.
- Hoʻopili ka pale kālā i kahi hapa o kāu uku maʻamau / uku ke hiki ʻole iā ʻoe ke hana ma muli o ka maʻi a i ʻole ka ʻeha.
- ʻO ke kīnā paʻa loa he huina kālā i uku ʻia iā ʻoe inā ʻaʻole manaʻo ʻia ʻoe e hoʻi i ka hana ma muli o kou maʻi.
E hilinaʻi ʻia kāu ʻinikua ma kāu ʻoihana superannuation a me kāu kulekele. Inā ʻaʻole hiki iā ʻoe ke hana ma muli o kāu lymphoma, e kelepona i kāu waihona superannuation a nīnau i ke kākoʻo a me nā ʻinikua i kūkulu ʻia i kāu kulekele.
Kōkua hou me ka Superannuation a me ke kālā
Inā pilikia ʻoe i ke komo ʻana i kāu kulekele hoʻolimalima a i ʻole nā kulekele ʻinikua, loaʻa iā Cancer Council Australia kahi papahana pro bono e hiki ke kōkua i ka ʻōlelo aʻo kānāwai a i ʻole ke kākoʻo ʻē aʻe e kōkua iā ʻoe e komo i kēia. Hiki iā ʻoe ke ʻike i ka ʻike hou aku e pili ana i ke kākoʻo a lākou e hāʻawi ai ke kaomi maʻaneʻi.
Inā ʻaʻohe ou laki, hiki iā ʻoe ke hoʻopiʻi me ka Ka Mana Kānāwai Kālā ʻAukekulelia. Hiki i nā loulou pono ʻē aʻe Loaʻa maʻaneʻi.
Nā Hana Hana
He ala maikaʻi nā hana kaiapuni e pili pū me ka ʻohana a me nā hoaaloha, a hiki ke lilo i mea hoʻokipa maikaʻi mai nā pilikia like ʻole e hele mai me ka maʻi lymphoma. ʻO ka noho pili ʻana he pahuhopu nui i kēia manawa.
Pono paha ʻoe e hoʻololi a hoʻololi paha i kekahi o kāu mau hana e pale aku ai i nā pilikia e like me ka maʻi, ke kahe ʻana o ke koko a i ʻole no kou luhi ʻole e hana i kāu mau hana maʻamau.
Ma lalo mākou e papa inoa i kekahi mau mea maʻamau e noʻonoʻo ai i ka wā e hana ai i nā hana kaiapili me ka lymphoma.
Loaʻa iā Central Venous Access Device (CVAD)
Inā loaʻa iā ʻoe kahi CVAD e like me ka laina PICC a i ʻole laina CVC ʻaʻole hiki iā ʻoe ke ʻauʻau a i ʻole ke komo ʻana i nā hana pili wai, a pono ʻoe e uhi i ka CVAD me kahi ʻaʻahu wai e ʻauʻau ai. ʻO kēia no ka mea aia nā catheters no kēia mau mea ma waho o kou kino a hiki ke pohō a i ʻole ka maʻi i kēia ʻano hana.
Hiki i ka hapa nui o nā haukapila ke hāʻawi iā ʻoe i kahi uhi wai - e nīnau wale i ka wā e hoʻololi ai ʻoe i kou mau lole.
No nā poʻe ʻauʻau kaiapili a hoʻokūkū paha, pono ʻoe e hoʻopaʻa i kēia mau hana, a i ʻole e koho paha ʻoe e koho i kahi port-a-cath ma kahi. ʻO ka port-a-cath kahi mea i hoʻopaʻa ʻia ma lalo o kou ʻili, koe wale nō ke hoʻohana ʻia a ua hoʻopili ʻia ka nila laina a me ke aho.
Moʻolelo maʻi - loaʻa ka CVAD i ka wā ma ka haukapila
Hoʻokomo ʻia i loko o ka ʻauwaʻa kikowaena (PICC)
ʻElua lumen HICKMAN - kahi ʻano o ka catheter waena i hoʻokomo ʻia i ke kikowaena Tunneled cuffed-centrally hoʻokomo ʻia (tc-CICC)
ʻEkolu lumen non-tunneled catheter kikowaena
Hoʻokaʻaʻike i nā hāmeʻa
Hiki i nā haʻuki hoʻokaʻaʻike e like me ka pôpeku, ka hockey a me ka pōpeku ke kumu i ke koko nui a me ka ʻeha ʻana inā he haʻahaʻa kou pae platelets, kahi mea maʻamau ma hope o ka mālama ʻana, a me kekahi ʻano lymphoma.
ʻO ka pili kokoke loa i nā kānaka i ka wā hoʻoikaika kino (hiki ke hoʻoulu i ka hanu kaumaha) hiki ke hoʻonui i kou pilikia o ka maʻi inā loaʻa iā lākou ka maʻi hanu a i ʻole ke olakino.
Nā hanana kaiaulu nui
ʻO ka lapaʻau ʻana, a i ʻole ʻo ʻoe ka lymphoma hiki ke hopena i ka hana pono ʻole o kāu ʻōnaehana pale e pale aku iā ʻoe mai nā germs. No laila, ʻōlelo ʻia e pale aku i ka hele ʻana i nā hanana kaiaulu nui e like me ke keaka, nā ʻaha mele, nā uku a me nā hale pō, ʻoiai ʻoe e neutropenic.
Inā ʻaʻole hiki iā ʻoe ke pale i kahi hanana no kekahi kumu, e mālama i ka mamao o ka nohona, e ʻaʻahu i ka maka, a pūliki a honi wale i nā poʻe āu i ʻike maikaʻi ai a ʻaʻole maʻi maʻi (a i ʻole e pale i nā pūliki a me nā honi a hiki i kou ʻōnaehana pale inā ʻike ʻoe i ka palekana. e hana ana i kēia). E lawe pū me ʻoe i ka mea hoʻomaʻemaʻe lima i hiki iā ʻoe ke disinfect i kou mau lima i kēlā me kēia manawa.
Hiki ke hoʻomau i ka hoʻopaʻa ʻana i ka wā mālama
Nui nā mea hiki iā ʻoe ke hoʻomau i ka hana inā loaʻa iā ʻoe ka lymphoma, ʻoiai ʻoiai e mālama ana. Eia nō naʻe, makemake paha ʻoe e noʻonoʻo i ka mālama ʻana e like me ka hele ʻana i ka nohona, ke kau ʻana i ka mask a me ka lawe lima lima me ʻoe no kekahi o lākou.
E kamaʻilio me kāu kauka a nīnau e pili ana i nā hanana kikoʻī i koʻikoʻi iā ʻoe a inā loaʻa kekahi kaohi i kāu mea hiki ke hana.
- Hele i nā kiʻiʻoniʻoni
- Hele i ka ʻaina ahiahi ma kahi hale ʻaina - e pale i nā buffets a e hōʻoia i ka hana hou ʻana o ka meaʻai
- Hoʻopaʻa me nā hoaaloha no ke kofe
- E hele wāwae ana me kahi hoaaloha
- Loaʻa i kahi pīniki
- Hele i ka pule a me nā ʻaha hoʻomana
- E hele ana ma kahi kaʻa lōʻihi
- Hele i ka hale haʻuki
- Ke hoʻomau nei i nā leʻaleʻa e like me ka hui puke, ka hoʻoikaika kino hui a i ʻole ka pena pena
- E hele i kahi lā
- E male a hele i kahi male
- E moe kolohe a pili pono paha me kāu hoa/hoa (E nānā i ka loulou ma lalo no ka ʻike hou aku).
Ke mālama nei i kou olakino noʻonoʻo, nā manaʻo a me ka maikaʻi holoʻokoʻa
ʻO ka noho ʻana me ka lymphoma a i ʻole CLL, ke kiaʻi a kali, ka mālama ʻana a me ke kala ʻana e hele mai me nā pilikia ʻokoʻa e hiki ke hoʻopilikia i kou ʻano a me kou olakino noʻonoʻo. He mea nui ka loaʻa ʻana o kahi pilina ākea me kāu kauka kūloko (kauka nui a i ʻole GP), a kūkākūkā a me kou hopohopo, a i ʻole nā loli i kou ʻano, nā manaʻo a me nā manaʻo.
Hiki i kāu GP ke kākoʻo iā ʻoe a kuhikuhi iā ʻoe i nā lawelawe kūpono inā makemake ʻoe i ke kākoʻo.
Hoʻolālā ola kino
Hiki i kāu GP ke hana i kahi hoʻolālā olakino noʻonoʻo no ʻoe e hōʻoiaʻiʻo ai e ʻike ʻoe i nā loea kūpono a loaʻa iā ʻoe i Medicare-subsidised me kahi kauka psychologist, GP loea, mea hana kaiaulu a i ʻole ka lāʻau lapaʻau ʻoihana. Me kēia hoʻolālā hiki iā ʻoe ke komo i 10 mau koho pākahi a me 10 mau hui hui.
Mai kali i kāu GP e hāʻawi i kēia, inā manaʻo ʻoe he mea pono ia iā ʻoe, e noi i kāu GP e hana i kahi hoʻolālā olakino noʻoe.
Hoʻolālā hoʻokele GP
Hiki i kāu GP ke hana i kahi hoʻolālā hoʻokele GP (GPMP) no ʻoe. Kōkua kēia hoʻolālā iā lākou e ʻike i kāu mau pono mālama ola a pehea e hiki ai iā lākou ke kākoʻo maikaʻi iā ʻoe. Hiki iā lākou ke hoʻohana i kēia hoʻolālā no ka ʻike ʻana i nā lawelawe o ke kaiāulu e hoʻohana ai iā ʻoe a hana i kahi hoʻolālā no ka mālama ʻana i kāu pono mālama lymphoma.
Nā hoʻonohonoho mālama hui
Hana ʻia kahi hoʻolālā hoʻonohonoho mālama hui e kāu GP a ua hana ʻia e kōkua iā ʻoe e komo i ke kākoʻo mai nā ʻoihana olakino pili like ʻole. Hiki i kēia ke komo:
- nā mea hana maʻi
- mea ʻai meaʻai
- podiatrist
- nā mea lapaʻau hana.
Style
Hiki i nā holoholona ke lilo i mea nui o ko mākou ola, a ʻo ka mālama ʻana i kāu pipi ke loaʻa iā ʻoe ka lymphoma e lawe i kahi hoʻolālā hou. ʻO ka Lymphoma a me kāna mau lapaʻau e hiki ai ke loaʻa iā ʻoe nā maʻi, a i ʻole ke koko a me ka ʻeha ʻana inā loaʻa ʻoe i ka nahu, ʻoki ʻia a i ʻole kahi holoholona nui e hele mai e hoʻomoe.
Pono ʻoe e mālama e hoʻōki i kēia mau mea mai ka hana ʻana a hoʻololi paha i ke ʻano o kāu pāʻani ʻana me kāu mau holoholona.
Mau mea e hana
- E hōʻike i kāu kauka inā ua nahu ʻia ʻoe a i ʻole ʻoe e ʻike i ka ʻeha maʻamau.
- E hōʻalo i ka mālama ʻana i nā ʻōpala holoholona e like me nā pā lepo. E noi i kekahi e kōkua iā ʻoe i kēia mau hana inā hiki. Inā ʻaʻohe mea nāna e kōkua, e hoʻohana i nā mīkina lima hou (a i ʻole nā mea hiki ke holoi ʻia ma hope o kēlā me kēia hoʻohana ʻana), e ʻaʻahu i kahi pale e pale aku ai i ka hanu ʻana i kekahi mea ʻino a holoi i kou mau lima me ke kopa a me ka wai ma hope koke o ka lawelawe ʻana i nā ʻōpala.
Loaʻa paha iā ʻoe nā kipa i manaʻo ʻole ʻia i ka haukapila, pono ʻoe e haʻalele i ka home no ka manawa pau ʻole, e hoʻopaneʻe ʻia i nā manawa koho a i ʻole ka luhi a nele i ka ikehu e mālama i kāu mau holoholona.
E hoʻolālā i mua a hoʻomaka e noʻonoʻo i ka mea hiki ke kōkua i ka mālama ʻana i kāu mau puaʻa ke hiki ʻole iā ʻoe. ʻO ka hoʻomaopopo ʻana i ka poʻe i ka wā e pono ai ʻoe i ke kōkua, a me ka nīnau ʻana inā makemake lākou e kōkua ma mua o ka pono e hāʻawi iā ʻoe i ka maluhia o ka noʻonoʻo a me ka maʻalahi o ka hoʻolālā ʻana inā makemake ʻoe i ke kōkua.
Hoʻolālā no ka mālama ʻana
ʻO ka hoʻoponopono ʻana i nā pilikia o ka naʻau a me ke kino o ka loaʻa ʻana o ka lymphoma, a he luhi paha ka mālama ʻana. He mea nui e hele aku a loaʻa ke kākoʻo inā pono ʻoe. Loaʻa pinepine mākou i nā poʻe i ko mākou ola e makemake e kōkua, akā ʻaʻole maopopo pehea. Ke hopohopo nei kekahi poʻe i ke kamaʻilio ʻana e pili ana i kou hele ʻana no ka mea hopohopo lākou e ʻōlelo hewa lākou, e hoʻohalahala a hoʻonāukiuki paha iā ʻoe. ʻAʻole kēia manaʻo ʻaʻole lākou mālama.
Hiki ke kōkua i ka hōʻike ʻana i nā mea āu e pono ai. Ma ka maopopo ʻana i kāu mea e pono ai, hiki iā ʻoe ke loaʻa ke kōkua a me ke kākoʻo āu e pono ai, a hiki i kāu poʻe aloha ke hauʻoli i ka hiki ke kōkua iā ʻoe ma ke ʻano kūpono. Aia kekahi mau hui i hoʻonohonoho i nā hoʻolālā hiki iā ʻoe ke hoʻohana e hoʻonohonoho i kekahi o ka mālama. Makemake paha ʻoe e hoʻāʻo:
Ka pale ʻana i kou hānau ʻana i ka wā lapaʻau
Hiki i ka lāʻau lapaʻau no ka lymphoma ke hōʻemi i kou momona (hiki ke hana i nā pēpē). Hiki i kekahi o kēia mau lāʻau lapaʻau ke komo i ka chemotherapy, kekahi mau antibodies monoclonal i kapa ʻia ʻo "immune checkpoint inhibitors" a me ka radiotherapy i kou pelvis.
ʻO nā pilikia fertility i hoʻokumu ʻia e kēia mau lāʻau lapaʻau:
- Ka menopause mua (hoʻololi o ke ola)
- ʻAʻole lawa ka ovarian (ʻaʻole i ka menopause akā hoʻololi i ka maikaʻi a i ʻole ka helu o nā hua i loaʻa iā ʻoe)
- Hoʻemi ʻia ka helu sperm a i ʻole ka maikaʻi o ka sperm.
Pono kāu kauka e kamaʻilio me ʻoe e pili ana i ka hopena o kāu mālama ʻana i kou momona, a he aha nā koho i loaʻa e kōkua i ka pale ʻana. Hiki ke mālama ʻia ka momona me kekahi mau lāʻau a i ʻole ma o ka ovum maloʻo (hua), sperm, ovarian a i ʻole ka ʻiʻo testicular.
Inā ʻaʻole i kamaʻilio kāu kauka me ʻoe, a ke manaʻo nei ʻoe e loaʻa nā keiki i ka wā e hiki mai ana (a i ʻole e hoʻomaka ana kāu keiki liʻiliʻi i ka mālama ʻana) e nīnau iā lākou i nā koho i loaʻa. Pono kēia kamaʻilio ma mua o kou hoʻomaka ʻana a i ʻole kāu keiki i ka mālama ʻana.
Inā ʻoe ma lalo o 30 mau makahiki hiki iā ʻoe ke loaʻa ke kākoʻo mai ke kahua ʻo Sony nāna e hāʻawi i kahi lawelawe mālama hānai manuahi ma waena o Australia. Hiki ke kelepona iā lākou ma 02 9383 6230 a i ʻole ma kā lākou pūnaewele https://www.sonyfoundation.org/youcanfertility.
No ka ʻike hou aku e pili ana i ka mālama ʻana i ka hānau ʻana, e nānā i ke wikiō ma lalo me ka loea fertility, ʻo A/Prof Kate Stern.
Nā kōkua kaʻa a me nā kōkua
Inā makemake ʻoe i ke kōkua ʻē aʻe e hele a puni, hiki paha iā ʻoe ke koho i kahi papahana ʻae kaʻa kaʻa a i ʻole ka papahana kōkua mokuʻāina. He mau papahana kēia e nā mokuʻāina a me nā panalāʻau like ʻole a hiki ke kōkua i ke kākoʻo ʻana i ke kumukūʻai o kāu uku kaʻa kaʻa, a i ʻole e kōkua iā ʻoe i kāu koho inā he lōʻihi kāu e hele ai. E ʻike i nā loulou ma lalo nei no ka ʻike hou aku i nā mea i loaʻa ma kou mokuʻāina.
Moku'āina | Kokua kaaahi | Nā papahana kōkua kaʻa moku |
ʻO'Awelika Komohana | https://www.transport.wa.gov.au/aboutus/taxi-user-subsidy-scheme.asp | |
ʻOʻAmelika Hema | https://www.sa.gov.au/topics/driving-and-transport/disability/taxi-fare-subsidy-scheme | |
Tasmania | https://www.sa.gov.au/topics/driving-and-transport/disability/taxi-fare-subsidy-scheme | |
Victoria | ||
New South Wales | https://transportnsw.info/travel-info/ways-to-get-around/taxi-hire-vehicle/taxi-subsidy-scheme | ʻO ka papahana kōkua huakaʻi a me ka noho ʻana o nā maʻi i hoʻokaʻawale ʻia (IPTAAS) |
ʻO Australian Capital Territory | https://www.revenue.act.gov.au/community-assistance/taxi-subsidy-scheme | |
Queensland | https://www.qld.gov.au/disability/out-and-about/subsidies-concessions-passes/taxi-subsidy | |
Ka Honua Northern |
Inikua Kaahele & Kaahele
Ma hope a i ʻole ma ka mālama ʻana, makemake paha kekahi mau maʻi e hele i kahi hoʻomaha. Hiki i ka lā hoʻomaha ke ala maikaʻi e hoʻolauleʻa ai i ka hoʻopau ʻana i ka mālama ʻana, hana i nā hoʻomanaʻo me ka poʻe aloha, a i ʻole he mea hoʻohilahila hauʻoli mai ke koʻikoʻi pili i ka maʻi kanesa.
I kekahi mau hihia, pono a makemake paha ʻoe e hele i ka wā o kāu lapaʻau ʻana, a i ʻole i ka manawa e pono ai ʻoe e loaʻa nā scan ma hope o ka mālama ʻana a me nā hoʻāʻo koko. E kamaʻilio me kāu kauka e pili ana i nā mea e hiki ke hoʻonohonoho iā ʻoe i kēia manawa. Inā hele ʻoe ma Australia, hiki i kāu hui lapaʻau ke hoʻonohonoho iā ʻoe i kāu nānā ʻana a i ʻole nā scan ma kahi haukapila ʻē aʻe - ʻoiai ma kahi mokuʻāina ʻē aʻe. Hiki i kēia ke lawe i kekahi manawa e hoʻonohonoho ai, no laila e ʻike koke ʻoe i ke kauka inā e hoʻolālā ana ʻoe e huakaʻi.
Inā hele ʻoe i ʻāina ʻē, pono ʻoe e ʻike i nā kumukūʻai e pili ana inā pono ʻoe e loaʻa ka mālama olakino e pili ana i kāu lymphoma ma laila. E kamaʻilio me kāu kauka haematologist ma Australia a e noiʻi i nā hui ʻinikua huakaʻi e uhi iā ʻoe. E hōʻoia e nīnau i ka mea i uhi ʻole ʻia i loko o nā kulekele ʻinikua.
He aha ka ʻinikua huakaʻi a he aha ka mea e uhi ai?
Mālama ka ʻinikua huakaʻi iā ʻoe no nā hanana, nā poho a i ʻole nā pōʻino e hiki mai ana i kou hele ʻana. ʻOiai ʻo ka hapa nui o ka ʻinikua huakaʻi e pale iā ʻoe no ka huakaʻi hele honua, hiki i kekahi mau kulekele ke uhi iā ʻoe no ka huakaʻi home.
E uhi ʻo Medicare i kekahi (a i kekahi manawa i nā mea a pau) o kāu mau koina olakino ma Australia.
Hiki i nā kulekele ʻinikua huakaʻi ke uhi iā ʻoe no nā ukana nalowale, nā pilikia i ka huakaʻi, nā koina olakino a me nā niho, ʻaihue a me nā lilo kānāwai a ʻoi aku ka nui ma muli o ka hui a me ke ʻano o ka uhi āu e kūʻai ai.
Ma hea e loaʻa ai iaʻu kahi ʻinikua huakaʻi?
Hiki iā ʻoe ke loaʻa ka ʻinikua huakaʻi ma o ka ʻinikua huakaʻi, ʻoihana ʻinikua, mea hoʻokele inikua a i ʻole ma o kāu ʻinikua olakino pilikino. Hiki i kekahi mau panakō ke hāʻawi aku i kahi ʻinikua huakaʻi manuahi ke hoʻāla ʻoe i kahi kāleka hōʻaiʻē kikoʻī. A i ʻole, koho paha ʻoe e kūʻai i ka ʻinikua huakaʻi ma ka pūnaewele kahi e hiki ai iā lākou ke hoʻohālikelike i nā kumukūʻai a me nā kulekele.
ʻO kēlā me kēia ala āu e koho ai e hana i kēia, e hoʻokaʻawale i ka manawa e heluhelu a hoʻomaopopo i nā kulekele ʻinikua a me nā hoʻokuʻu e pili ana.
Hiki iaʻu ke loaʻa ka ʻinikua huakaʻi inā loaʻa iaʻu ka lymphoma/CLL?
Ma ka ʻōlelo maʻamau, ʻelua mau koho no ka ʻinikua huakaʻi a me ka maʻi kanesa.
- Koho ʻoe e lawe i kahi kulekele ʻinikua ʻaʻole e uhi iā ʻoe no nā pilikia pili i ka maʻi kanesa a me nā maʻi. No ka laʻana, inā ʻoe e huakaʻi ana i nā ʻāina ʻē me nā keʻokeʻo keʻokeʻo haʻahaʻa haʻahaʻa ma muli o ka chemotherapy a loaʻa i kahi maʻi weliweli e koi ana i kahi komo lōʻihi o ka haukapila, pono ʻoe e uku i nā kumukūʻai.
- Koho ʻoe e lawe i kahi kulekele piha e uhi ana iā ʻoe no nā pilikia pili i ka maʻi maʻi a i ʻole ka maʻi. Pono ʻoe e mākaukau e uku i ka uku ʻoi aku ka kiʻekiʻe, a pono paha i ka hui ʻinikua e hōʻiliʻili i ka ʻike hohonu loa e pili ana i kāu lymphoma/CLL e like me ke kahua, ka mālama ʻana, nā hoʻāʻo koko a me nā mea ʻē aʻe. Hematologist e hoʻomaʻemaʻe iā ʻoe no ka huakaʻi i waho.
ʻO kekahi mau ʻike e pono ai ʻoe e loaʻa i ka wā e kamaʻilio ai me ka mea hoʻolako huakaʻi:
- ʻO kāu subtype lymphoma
- ʻO kāu pae ma ka hōʻailona
- ʻO kāu mau protocols lapaʻau
- Ke hoʻopau ʻoe i kāu lapaʻau hope loa
- ʻO kāu mau hoʻāʻo koko hou loa
- ʻO nā lāʻau lapaʻau a pau āu e lawe nei
- Inā hoʻolālā ʻia nā hoʻokolohua hou aku no nā mahina 6 e hiki mai ana.
Nā ʻaelike mālama ola kino
Loaʻa iā Australia nā ʻaelike olakino pili like me kekahi mau ʻāina. 'O ia ho'i, inā hele 'oe i ka 'āina me ka 'aelike pāna'i, loa'a paha iā 'oe ke kumu kū'ai no ka mālama 'ana i ka lā'au lapa'au i uhi 'ia e Medicare. No ka ʻike hou aku e pili ana i kēia mau ʻaelike a me nā ʻāina i loaʻa i Australia kahi ʻaelike like me ka ʻike i ka Services Australia pūnaewele puni honua.
e hoohauhee ana
ʻAʻole pili ka maʻi lymphoma i kou hiki ke hoʻokele. Ke hoʻomau nei ka hapa nui o ka poʻe i ke kaʻa ma ke ʻano like ma mua o ka ʻike ʻia ʻana. Eia nō naʻe, hiki i kekahi mau lāʻau lapaʻau i hoʻohana ʻia ma ke ʻano he ʻāpana o ka mālama ʻana e hiki ke hoʻoulu i ka hiamoe, ka manaʻo o ka maʻi a i ʻole ka hopena i ka hiki ke noʻonoʻo. I kēia mau kūlana, ʻaʻole ʻōlelo ʻia ke kaʻa.
ʻOiai ʻo ka hapa nui o nā poʻe maʻi e hoʻomau i ke kaʻa e like me ka mea maʻamau i ko lākou huakaʻi maʻi maʻi he mea maʻamau ka manaʻo o ka luhi a luhi paha i nā lā i hāʻawi ʻia ai ka lāʻau lapaʻau.
Inā hiki, e hoʻonohonoho me ka ʻohana a me nā hoaaloha no ke kipaku ʻana iā ʻoe i ka lāʻau lapaʻau a inā he pilikia kēia, pono ʻoe e nīnau i ka hui mālama ola inā loaʻa iā lākou kekahi ʻōlelo aʻoaʻo e like me ka loaʻa ʻana o nā koho kaʻa ʻē aʻe.
Inā hōʻike ke kauka i nā hopohopo e pili ana i ka hiki ke hoʻokele o ka mea maʻi, pono e hōʻike i kēia i ke keʻena lawe. Manaʻo ʻia hoʻi e hoʻomaopopo ʻia ka hui ʻinikua e pili ana i ka maʻi o ka mea maʻi a i ʻole nā hopohopo a ke kauka e pili ana i ko lākou hiki ke hoʻokele.
Loaʻa kekahi mau maʻi i nā hopena ʻaoʻao mai ka mālama ʻana i hiki ke hoʻopilikia i ko lākou hiki ke hoʻokele:
- Hiki i ka neuropathy āpau ke hoʻopilikia i kou mau wāwae a me kou mau lima.
- Hoʻemi ka lolo Chemo i ka noʻonoʻo ʻana a hoʻonui i ka poina, wehewehe kekahi poʻe i kēia me ka noe ma luna o ko lākou noʻonoʻo. ʻO nā ʻike koʻikoʻi o kēia mea hiki ke hōʻoluʻolu i ke kaʻa.
- ʻO ka luhi, luhi kekahi poʻe i ka wā o ka mālama ʻana a loaʻa iā lākou nā hana o kēlā me kēia lā e like me ke kaʻa ʻana.
- Hoʻololi ka lohe a ʻike paha, inā he mau loli i ka hihiʻo a lohe paha, e kamaʻilio me ke kauka e pili ana i ka hopena o kēia i ka hiki ke hoʻokele.
E hooponopono ana i na hana
Kaomi ma nā poʻomanaʻo ma lalo nei e aʻo hou e pili ana i ka ʻinikua ola, ke kākau ʻana i kahi palapala kauoha a me ka mana mau o ka loio.
ʻO ke kōʻai ola
ʻAʻole pono ka hōʻailona hou o ka lymphoma i kāu mau kulekele uhi ola. Eia nō naʻe, he mea nui e ʻoiaʻiʻo mau me kāu hāʻawi ʻinikua inā nīnau ʻia nā nīnau. E kamaʻilio me kāu hui ʻinikua inā pono ʻoe e hana i kahi koi i ka wā o ka maʻi maʻi, ka mālama ʻana a me ka mālama ʻana ma hope o ke ola.
Loaʻa paha iā ʻoe ka ʻinikua ola ma ke ʻano he ʻāpana o kāu waihona superannuation. E kelepona i kāu waihona kālā no ka ʻike i ka wā a pehea e hiki ai iā ʻoe ke komo i kēia.
Inā 'a'ole 'oe i 'inikua, akā makemake 'oe e ki'i, pono 'oe e hō'ike iā lākou he lymphoma kou a hā'awi i ka 'ike e pono ai e hā'awi iā 'oe i ka mana'o.
Kakau ana i ka Palapala Kauoha
Manaʻo ke Aupuni Australia i kēlā me kēia ma mua o 18 mau makahiki, e kākau i kahi palapala kauoha me ka nānā ʻole inā 'pono' ʻoe a ʻaʻole paha.
ʻO ka palapala kauoha he palapala kānāwai e hōʻike ana pehea ʻoe e makemake ai e puʻunaue ʻia kāu waiwai inā e hala ʻoe. He palapala kānāwai hoʻi ia e hoʻopaʻa ana i kāu mau makemake no kēia mau mea:
- ʻO wai kāu e koho ai i kahu no nā keiki a i ʻole nā mea hilinaʻi āu e kuleana ai.
- Hoʻokumu i kahi moʻokāki hilinaʻi e hoʻolako i nā keiki a i ʻole nā mea hilinaʻi.
- E wehewehe i ke ʻano āu e makemake ai e mālama i kāu mau waiwai.
- Hōʻike i kou makemake e hoʻonohonoho ʻia kou hoʻolewa.
- Hōʻike i nā haʻawina aloha āu e makemake ai e kuhikuhi (ʻike ʻia kēia he mea kōkua).
- Hoʻokumu i mea hoʻokō - ʻo ia ke kanaka a hui paha āu i koho ai e hoʻokō i nā makemake o kāu makemake.
He ʻokoʻa iki ka hana o kēlā me kēia mokuʻāina a me ka teritori ma Australia no ke kākau ʻana i kou makemake.
heluhelu hou e pili ana i ke kākau ʻana i palapala kauoha ma kou mokuʻāina a i ʻole ka ʻāina.
Mana Mana mau
He palapala kānāwai kēia e koho ai i kekahi kanaka a i ʻole kekahi poʻe koho e hoʻoholo i nā hoʻoholo kālā, mālama i kāu waiwai a hoʻoholo i nā hoʻoholo olakino no ʻoe inā ʻaʻole hiki iā ʻoe ke hana.
Hiki ke hoʻokumu ʻia kēia ma o kāu kahu mālama aupuni mokuʻāina a i ʻole nā teritore. Hiki ke hana ʻia kahi mana kauka lōʻihi me ka Advanced Health Directive.
He palapala kānāwai ʻo Advanced Health Directive e wehewehe ana i kāu mau makemake e pili ana i nā lāʻau lapaʻau a me nā hana āu e hana ai a makemake ʻole paha.
No ka loaʻa ʻana o ka ʻike hou aku e pili ana i kēia mau palapala, e kaomi i nā loulou ma lalo nei.
Mana Manawa o ka Loio - kaomi ma kou moku'āina a i 'ole ka'āina ma lalo.
Kākoʻo hou aku
- Hiki iā mākou ke pūnaewele: https://wecan.org.au
- Nā maʻi kahiko Hiki iā mākou ke pūnaewele: https://wecan.org.au/oldercan/
- Hiki iā ʻoe nā kikowaena no nā ʻōpio a me nā ʻōpio makua: https://www.sonyfoundation.org/you-can-centres
- E hōʻiliʻili i kaʻu hui: https://www.gathermycrew.org.au/
E hoʻohana i ka papahana e hoʻopaʻa inoa i nā kōkua e like me ka ʻai, ka lawe ʻana, ka mālama keiki, a me ke kōkua home. - Ka makua ma o ke kanesa: https://parentingthroughcancer.org.au/
