ʻO ka Lymphoma kahi maʻi kamaliʻi liʻiliʻi me kahi o 100 mau keiki ma Australia i ʻike ʻia i kēlā me kēia makahiki. Eia nō naʻe, ʻoiai he kakaikahi, ʻo ia ke kolu o ka maʻi kanesa maʻamau i nā keiki, nā ʻōpio a me nā ʻōpio.
Hiki ke ho'ōla 'ia ka nui o ka po'e 'ōpio, me ka lymphoma ki'eki'e ma hope o nā lā'au lapa'au ma'amau.
ʻO Lymphomas He pūʻulu o nā maʻi maʻi maʻi o ke ʻano o ke koko keʻokeʻo keʻokeʻo i kapa ʻia nā lymphocytes, e noho nui nei i loko o kā mākou ʻōnaehana lymphatic. Hoʻomohala lākou i ka wā nā lymphocytes, ʻO ia ke ʻano o ke koko keʻokeʻo, hoʻomohala i nā hoʻololi DNA e hoʻokaʻawale a ulu ʻole ʻia, e hopena i ka lymphoma. ʻElua ʻano nui o ka lymphoma, ʻO ka lymphoma o Hodgkin a Non-Hodgkin lymphoma (NHL).
Hiki ke hoʻokaʻawale ʻia ʻo Lymphoma i:
- Molowa (slow growing) lymphoma
- ʻO lymphoma kūpikipikiʻō (wikiwiki).
- B-cell lymphoma ulu mai nā lymphocytes B-cell maʻamau & ʻo ia ka mea maʻamau, helu ʻia ma kahi o 85% o nā lymphomas āpau (nā makahiki āpau)
- T-cell lymphoma ulu mai nā lymphocytes T-cell maʻamau a helu ʻia ma kahi o 15% o nā lymphoma āpau (nā makahiki āpau).
He aha ke kumu
I ka nui o na hihia o ka lymphoma, ka kumu ʻaʻole ʻike ʻia. ʻAʻole like me nā maʻi maʻi maʻi ʻē aʻe, ʻaʻole mākou ʻike i nā koho ʻano ola e hopena i ka lymphoma, no laila ʻaʻohe mea āu i hana ai a ʻaʻole i hana i loaʻa iā ʻoe (a i kāu keiki paha) ka lymphoma. ʻAʻole ia he maʻi maʻi a ʻaʻole hiki ke hoʻoili ʻia i nā poʻe ʻē aʻe. ʻO ka mea a mākou e ʻike ai, ua hōʻino ʻia nā protein kūikawā a i ʻole nā genes (e lilo i mutated) a laila ulu ʻole me ke kāohi ʻole.
Ma hea e loaʻa ai ka lāʻau lapaʻau i nā ʻōpio?
E mālama ʻia ka hapa nui o nā keiki ma kahi haukapila o nā keiki kūikawā akā naʻe, hiki i nā ʻōpio 15-18 mau makahiki ke hoʻouna ʻia e kā lākou GP i kahi haukapila o nā keiki (paediatric) a i kahi haukapila makua. E mālama mau ʻia ka poʻe ʻōpio ma luna o 18 mau makahiki ma kahi haukapila makua.
ʻO ke ʻano o kekahi mau lāʻau lapaʻau, pono ʻoe e noho i ka haukapila, ʻoiai e hāʻawi ʻia nā lāʻau lapaʻau ʻē aʻe ma kahi hoʻonohonoho lā kahi āu e mālama ai, a laila hoʻi i ka home i ka lā hoʻokahi.
Loaʻa nā ʻano lymphoma i nā ʻōpio
ʻElua ʻano nui o ka lymphoma, ʻO ka lymphoma o Hodgkin a Non-Hodgkin lymphoma (NHL).
ʻO ka lymphoma o Hodgkin (HL)
He kakaikahi ka lymphoma Hodgkin i nā keiki ma lalo o 5 mau makahiki, akā ʻoi aku ka maʻamau i nā ʻōpio a me nā ʻōpio. Eia nō naʻe, hiki ke hoʻopilikia i nā kānaka o nā makahiki āpau me nā pēpē a me nā poʻe ʻelemakule.
He maʻi maʻi ʻino ia o nā lymphocytes B-cell a ʻo kekahi o nā ʻano maʻi maʻi maʻamau e loaʻa i nā keiki. ʻO nā keiki āpau i piha i ka 0-14 makahiki me ka lymphoma, ma kahi o 4 i kēlā me kēia 10 e loaʻa kahi ʻano ʻano o Hodgkin Lymphoma.
ʻO nā subtypes nui ʻelua o Hodgkin lymphoma (HL) ʻo:
- ʻO ka lymphoma Hodgkin maʻamau: ʻO ka subtype maʻamau o Hodgkin lymphoma a ua ʻike ʻia e ke ʻano o nā pūnaewele Reed-Sternberg nui a ʻano ʻē.
- Nodular lymphocyte predominant Hodgkin lymphoma: pili i nā ʻano like ʻole o nā pūnaewele Reed-Sternberg i kapa ʻia ʻo 'popcorn' cell. Loaʻa pinepine nā pūpū popcorn i kahi protein ma luna o lākou i kapa ʻia ʻo CD20, ʻaʻole i loaʻa iā Classical Hodgkin Lymphoma.
lymphoma non-Hodgkin (NHL)
Hiki i ka NHL ke hoʻomāinoino (ke ulu wikiwiki) a i ʻole ka molowa (ke ulu mālie) i ka hana a hiki i ka wā e lilo ai kāu lymphocytes B-cell a i ʻole T-cell i ka maʻi kanesa.
Aia ma kahi o 75 mau ʻano like ʻole o ka lymphoma non-Hodgkin. ʻO ka 4 i ʻike pinepine ʻia i nā keiki i helu ʻia ma lalo nei, hiki iā ʻoe ke kaomi iā lākou no ka ʻike hou aku.
- ʻO ka Large B-cell Lymphoma (DLBCL) no nā keiki.
- ʻO ka Lymphoma o Pediatric Burkitt
- ʻO Lymphoma Lymphoblastic Pediatric
- ʻO ka maʻi maʻi anaplastic Large Cell Lymphoma (ALCL)
ʻO ka wānana o ka lymphoma i ka poʻe ʻōpio
He maikaʻi loa ka wānana no ka hapa nui o ka poʻe ʻōpio me ka lymphoma. Hiki ke ho'ōla 'ia ka nui o ka po'e 'ōpio me ka lymphoma me ka lā'au lapa'au ma'amau e pili ana i ka chemotherapy, 'oiai i ka wā i 'ike mua 'ia ai lākou me ka lymphoma ko'iko'i. No ka ʻike hou aku e pili ana i ka wānana no nā ʻano lymphoma like ʻole i ka poʻe ʻōpio, e ʻoluʻolu e ʻike i nā ʻaoʻao subtype i helu ʻia ma luna.
ʻO ka mea kaumaha, ʻaʻole i pane like ka heluna o nā ʻōpio i nā lāʻau lapaʻau. E nīnau i kāu kauka (a i ke kauka o kāu keiki) e pili ana i ka mea e manaʻo ai a pehea e ola ai kāu lymphoma.
ʻO ke ola lōʻihi a me nā koho lapaʻau e hilinaʻi ʻia ma nā ʻano kumu like ʻole:
- kou mau makahiki i ka wā i ʻike mua ʻia ai ʻoe me ka lymphoma.
- ka ke kahua o ka lymphoma.
- He aha ke ʻano o ka lymphoma iā ʻoe.
- pehea e pane ai ka lymphoma i ka lāʻau lapaʻau.
Nānā - Pono kū hoʻokahi o nā ʻōpio a me nā ʻōpio me ka lymphoma
Lohe mai iā Dr Orly – Helu ma St Vincents Sydney e kamaʻilio e pili ana i nā pono kūʻokoʻa o nā ʻōpio a me nā ʻōpio me ka lymphoma.
Lapaʻau no ka lymphoma
Pono ʻoe (a i ʻole kāu keiki) i ka lāʻau lapaʻau a hiki ke komo pū kekahi chemotherapy (pinepine pū me immunotherapy) a i kekahi manawa ke kauwela pū kekahi. Ma muli o ke ʻano o ka lymphoma, hoʻohana ʻia nā lāʻau lapaʻau like ʻole no nā ʻano lymphoma like ʻole.
E noʻonoʻo nā kauka i nā kumu he nui e pili ana i ka lymphoma a me ke olakino maʻamau o kāu keiki e hoʻoholo ai i ka wā a me ka lāʻau e pono ai. Hoʻokumu ʻia kēia ma:
- ka pae o ka lymphoma.
- Ōuli loaʻa iā ʻoe ke ʻike ʻia ʻoe me ka lymphoma.
- Inā loaʻa iā ʻoe kekahi maʻi ʻē aʻe a i ʻole e lawe ana i nā lāʻau lapaʻau ʻē aʻe.
- ʻO kou olakino maʻamau me kou ola kino a noʻonoʻo.
- ʻO kāu mau makemake (a i ʻole kou mau mākua) ma hope o ka loaʻa ʻana o ka ʻike āpau āu e pono ai.
Ka mālama mālamaʻana
Nā moʻolelo hoʻomanawanui
ʻIke a me nā kākoʻo no nā mākua a me nā kahu hānai
Inā he makua ʻoe a kahu paha o kahi keiki i ʻike ʻia me ka lymphoma, hiki ke lilo ia i mea kaumaha a me ka naʻau. ʻAʻohe pane pololei a hewa ʻole.
He mea nui e hāʻawi iā ʻoe iho a me kou ʻohana i ka manawa e hoʻoponopono a hōʻoia i ka ʻike. He mea nui hoʻi ʻaʻole ʻoe e lawe i ke kaumaha o kēia maʻi ma kāu iho no ka mea aia kekahi mau hui kākoʻo e kōkua nei iā ʻoe a me kou ʻohana i kēia manawa.
Hiki iā ʻoe ke hoʻokaʻaʻike i kā mākou Lymphoma Care Nurses ma ke kaomi ʻana i ka kāhea iā mā˚ou pihi ma lalo o kēia ʻaoʻao.
Aia nā kumuwaiwai ʻē aʻe āu e ʻike ai he kōkua ma lalo nei:
ʻO ke kula a me ke aʻo ʻana
Inā ʻelemakule kāu keiki, hopohopo paha ʻoe pehea e hoʻomau ai i ke kula i ka wā e mālama ai. A i ʻole paha, ua paʻa loa ʻoe i nā mea a pau e hana nei ʻaʻole ʻoe i loaʻa ka manawa e noʻonoʻo ai.
Hiki paha i kāu mau keiki ʻē aʻe ke haʻalele i ke kula inā pono kou ʻohana e hele i kahi mamao a noho kaʻawale mai ka home aʻo kāu keiki me ka lymphoma i ka haukapila.
Akā, he mea nui ka noʻonoʻo ʻana i ke kula. Hiki ke ho'ōla ʻia ka hapa nui o nā keiki me ka lymphoma a pono lākou e hoʻi i ke kula i kekahi manawa. Nui nā halemai o nā keiki nui he lawelawe aʻo a kula paha e hiki ai i kāu keiki me ka lymphoma a hiki i kāu mau keiki ʻē aʻe ke hele i ka wā e mālama ʻia ai kāu keiki a i ka haukapila.
Aia nā lawelawe kula ma lalo o nā halemai nui i loko o kā lākou lawelawe. Inā mālama ʻia kāu keiki ma kahi haukapila ʻē aʻe ma mua o nā mea i helu ʻia ma ʻaneʻi, e nīnau iā lākou e pili ana i ke kākoʻo kula no kāu keiki.
QLD. - Ke Kula Haumaʻi Keiki o Queensland (eq.edu.au)
VIC. - Victoria, Keʻena Hoʻonaʻauao: Ke Kula Hoʻonaʻauao (rch.org.au)
SA - Nā papahana hoʻonaʻauao halemai o ke Kula Haukapila o South Australia
WA - Kula ma ka haukapila (health.wa.gov.au)
NSW - Kula ma ka haukapila | Huina Halemai o na Keiki o Sydney (nsw.gov.au)
hōʻuluʻulu manaʻo
- ʻO ka Lymphoma ka 3 maʻi maʻi maʻamau i nā keiki, a ʻo ka maʻi maʻi maʻamau i nā ʻōpio a me nā ʻōpio.
- Nā hōʻailona Ua hoʻomaikaʻi maikaʻi ʻia i nā makahiki a hiki ke ho'ōla ʻia ka poʻe ʻōpio me ka lymphoma.
- Aia nā ʻano lāʻau lapaʻau like ʻole a ʻo ka mālama ʻana iā ʻoe e hilinaʻi ʻia ma ke ʻano subtype a me ka pae o kāu lymphoma.
- E nīnau i kāu kauka pehea e hana ai mālama i kou momona no laila hiki iā ʻoe ke loaʻa nā pēpē ma hope o ke ola. E nīnau e pili ana i kēia ma mua o kou hoʻomaka ʻana i ka mālama ʻana.
- Nā nā ʻaoʻao hiki ke hana koke ma hope o ka mālama ʻana a i ʻole nā makahiki ma hope. E nānā pono i kā mākou ʻaoʻao hopena ʻaoʻao.
- E hōʻike i nā mea hou a me nā mea hou aʻe nā hōʻailona i kāu kauka.
- E kelepona i kā mākou mau kahu hānai Lymphoma 1800 953 081 inā makemake ʻoe e kamaʻilio e pili ana i kāu lymphoma a i ʻole nā lāʻau lapaʻau o kāu keiki.
